Neuropathy, Elisa
I'd been diagnosed with RA for many years, but that didn't really answer the neuropathy, specifically dysautonomia, symptoms I was experiencing.
These symptoms were debilitating from weakness to overwhelming fatigue to chest pain and even passing out. Finally Sjögren's showed itself in labs, and this answered a LOT of questions. From symptoms to diagnosis took 10 years with lots of falls, syncopal episodes and even a pacemaker. My pulse was 19 when I went to surgery. They told my husband to call my parents and to get the kids from school, it was very scary...But a good journey and a hard journey can be the same journey. #goodhardjourney
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Each Patient-to-Patient story discusses a specific symptom or aspect of living with Sjögren’s. They are a unique look into how individuals manage their disease.
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