POTS, Chronic Pain, and finding coaching for physical rehabilitation and Sjögren's, Robert
After experiencing a severe flare-up in early 2020, I became largely bedbound and lost most of my strength. At first, none of the Doctors I saw had useful advice on how to exercise with chronic pain and severe fatigue. One Doctor even told me I was hopeless if I couldn't follow his simple exercise protocol. After cycling through many practitioners for over a year, I found care providers willing to look at all my challenges, build a plan specific to me, and give ongoing support.
I cannot predict how disabled I will be day to day, so it's challenging for me to plan ahead. On some days, I'm in the gym with my physical therapist, lifting heavy weights. On others, I cannot get out of bed.
Click here to read Robert discussing the challenges of POTS, Chronic Pain, and …
Share Your Story
Each Patient-to-Patient story discusses a specific symptom or aspect of living with Sjögren’s. They are a unique look into how individuals manage their disease.
These stories will be shared once a month for patients to share directly how they are effectively coping with the disease and offer advice for others.
*All stories come from the patient's voice. The listing of any products does not constitute as an endorsement of those products. We strongly advise that you consult with your physician, dentist and/or pharmacist regarding your treatment plan and finding what is right for you.
To submit a Patient-to-Patient story click here.
