Support Groups offer a place for people living with Sjögren’s to connect, share and learn about managing their daily lives with the disease. Led by volunteer patients across the country, these groups are a way to connect Sjögren’s patients within their communities or states and allow them to learn from one another by sharing their experiences, tips, and suggestions.
These groups provide:
- Guided topic discussions related to Sjögren’s
- Patient-to-patient sharing of experiences
- An opportunity to connect and exchange helpful coping techniques
- Knowledge of helpful resources
To find out if there is a support group in your area, check the listing below.
**Corporate or organizational requests to Support Group Leaders for the purpose of product sales, marketing, or of member solicitation (e.g., participation in opinion polls or research studies) are strictly prohibited. Any such requests must be approved through the Sjögren’s Foundation by contacting info [at] sjogrens [dot] org (info[at]sjogrens[dot]org).
Support Group Contact: Liz Kray
Contact Information: seacoastsjogrensgroup [at] gmail [dot] com (seacoastsjogrensgroup[at]gmail[dot]com)
Phoenix Area
Support Group Leader: Yolanda
Contact Information: azsjogrensgroup [at] gmail [dot] com (azsjogrensgroup[at]gmail[dot]com)
We are currently seeking volunteer support group leaders for Northern California and Central Coast. Interested in learning more? Please review our support group information sheet here and email mchampigny [at] sjogrens [dot] org (Michele Champigny) if you feel this volunteer opportunity is a good match for you!
Greater Los Angeles/Southland
Support Group Leader: Susan B.
Contact Information: LAsjogrensgroup [at] yahoo [dot] com (LAsjogrensgroup[at]yahoo[dot]com)
San Diego
Support Group Leader: Madaline Pike
Contact Information: (858) 775-2059
San Francisco Bay Area
Support Group Leader: Meghan Khalsa and Lauren
Contact Information: (415) 699-4117 or megkhalsa [at] yahoo [dot] com (megkhalsa[at]yahoo[dot]com) // laurenmiranda [at] yahoo [dot] com (laurenmiranda[at]yahoo[dot]com)
Ft. Collins/Loveland
Support Group Leader: Mollee Reiber
Contact Information: (970) 302-1039 or preschoolmollee [at] yahoo [dot] com (preschoolmollee[at]yahoo[dot]com)
Farmington
Support Group Leader: MaryBeth
Contact Information: (860) 569-6933
We are currently seeking volunteer support group leaders for Southern Florida (Fort Lauderdale/Miami) and Tampa areas. Interested in learning more? Please review our support group information sheet here and email mchampigny [at] sjogrens [dot] org (Michele Champigny) if you feel this volunteer opportunity is a good match for you!
Jacksonville
Support Group Leader: Mary A. Kovacs
Contact Information: (248) 549-7139 or marykovacs7 [at] comcast [dot] net (marykovacs7[at]comcast[dot]net)
Click here to find 2023 Calendar of Meetings
Lady Lake
Support Group Leader: Karen Marshall
Contact Information: (231) 972-3110 or kato1420 [at] gmail [dot] com (kato1420[at]gmail[dot]com)
Click here to find 2023 Calendar of Meetings
Orlando Area
Support Group Leaders: Linda Neall
Contact Information: (407) 446-3846 or lindaneall12 [at] gmail [dot] com (lindaneall12[at]gmail[dot]com)
Atlanta Area
Support Group Leaders: Suzi Wixson and Lois Pippin
Contact Information: (770) 367-6062 or suziwixson [at] comcast [dot] net (suziwixson[at]comcast[dot]net) // (404) 373-1403 or Lspippin [at] mindspring [dot] com (Lspippin[at]mindspring[dot]com)
Support Group Leader: Kathi
Contact Information: hawaiisjogrensgroup [at] gmail [dot] com (hawaiisjogrensgroup[at]gmail[dot]com)
Support Group Leader: Kathy M Ellis
Contact Information: bengalbabe1 [at] yahoo [dot] com (bengalbabe1[at]yahoo[dot]com)
Chicago Area
Support Group Co-Leaders: Karen M and Elaine
Contact Information: klweis [at] yahoo [dot] com (klweis[at]yahoo[dot]com)
Indianapolis
Support Group Contact: Vivian Kistler
Contact Information: (317) 408-2844 or vivkistler [at] yahoo [dot] com (vivkistler[at]yahoo[dot]com)
Greater Kansas City Area
Support Group Leaders: Janine & Cindy K
Contact Information: (913) 485-3943 (Janine) // (417) 880-8971 (Cindy)
Baltimore
Support Group Leader: Renee Phillips
Contact Information: (410) 790-9822 or BaltimoreMDSjogrensGroup [at] gmail [dot] com (BaltimoreMDSjogrensGroup[at]gmail[dot]com)
Montgomery
Support Group Leader: Bonnie
Contact Information: MontgomeryCtyMDSjogrensGroup [at] gmail [dot] com (MontgomeryCtyMDSjogrensGroup[at]gmail[dot]com)
Click here for our 2023 Calendar of Meetings
Prince George's & Southern Maryland
Support Group Leader: Taylor
Contact Information: SouthernMDSjogrensGroup [at] gmail [dot] com (SouthernMDSjogrensGroup[at]gmail[dot]com)
We are currently seeking volunteer support group leaders across Massachusetts including Boston, Worcester, and Springfield areas. Interested in learning more? Please review our support group information sheet here and email mchampigny [at] sjogrens [dot] org (Michele Champigny) if you feel this volunteer opportunity is a good match for you!
Boston Area
Support Group Leader: Mabi L. Singh
Contact Information: mabi_l [dot] singh [at] tufts [dot] edu (mabi_l[dot]singh[at]tufts[dot]edu)
St. Clair County
Support Group Leader: Barbara Skovran
Contact Information: (810) 637-8129
Click here to find 2023 Calendar of Meetings
Afternoon Support Group
Support Group Leader: Cynthia Neubecker
Contact Information: redduncan936 [at] gmail [dot] com (redduncan936[at]gmail[dot]com)
Click here to find 2023 Calendar of Meetings
Evening Support Group
Support Group Leaders: Marie MV and Lindsay N
Contact Information: mneveningsjogrens [at] gmail [dot] com (mneveningsjogrens[at]gmail[dot]com)
Support Group Leader: Support Group Leader Opening
Contact Information:
Support Group Contact: Lauren
Contact Information: njsjogrensgroup [at] gmail [dot] com (njsjogrensgroup[at]gmail[dot]com)
Support Group Contact: Andrea Dowdy
Contact Information: andrea [dot] dowdy [at] yahoo [dot] com (andrea[dot]dowdy[at]yahoo[dot]com)
We are currently seeking volunteer support group leaders in New York State for NYC and Long Island. Interested in learning more Please review our support group information sheet here and email mchampigny [at] sjogrens [dot] org (Michele Champigny) if you feel this volunteer opportunity is a good match for you!
New York City Area
Interim Support Group Leader: Paula Yelsey
Contact Information: (301) 538-3422
Click here to find out information about the next meeting
New York City Area "20s & 30s" with Sjögren's
Support Group Leader: Paula Yelsey
Contact Information: (301) 538-3422
Click here to find out information about the next meeting
Upstate New York
Support Group Leader: Jen Austin
Contact Information: (716) 980-5980 or upstatenysjogrensgroup [at] gmail [dot] com (upstatenysjogrensgroup[at]gmail[dot]com)
Durham
Support Group Leader: Nancy Carter
Contact Information: durhamsjogrens [at] gmail [dot] com (durhamsjogrens[at]gmail[dot]com)
Click here to find out information about the next meeting
Charlotte
Support Group Leader: SS and Salivary Disorders Ctr at Carolinas Medical Center
SS and Salivary Disorders Ctr at Carolinas Medical Center will resume meetings in 2023.
Columbus / Central Ohio
Support Group Leader: Gayle Wanamaker
Contact Information: Wanamakergayle [at] gmail [dot] com (Wanamakergayle[at]gmail[dot]com)
Click here to find 2023 Calendar of Meetings
Northeast Ohio
Support Group Leader: Support Group Leader Opening
Contact Information:
Toledo Area
Support Group Leader: Judith Furlong
Contact Information: furlongja [at] gmail [dot] com (furlongja[at]gmail[dot]com)
Edmond
Support Group Leader: Sharon J Abrams
Contact Information: (405) 330-2356
Portland
Support Group Leader: Support Group Leader Opening
Contact Information:
Central Pennsylvania
Support Group Leader: Support Group Leader Opening
Contact Information:
Philadelphia
Support Group Leader: Barbara
Contact Information: (610) 653-4689 or MyPhillySjogrens [at] gmail [dot] com (MyPhillySjogrens[at]gmail[dot]com)
Support Group Contact: Danita N Calvert
Contact Information: scvirtualsjogrensgroup [at] gmail [dot] com (scvirtualsjogrensgroup[at]gmail[dot]com)
Nashville
Support Group Leader: Vicki B
Contact Information: Baldwin [dot] vicki [at] yahoo [dot] com (Baldwin[dot]vicki[at]yahoo[dot]com)
Austin/Central Texas
Support Group Leaders: Paula Aicklen and Charlene
Contact Information: (214) 228-3678 or paicklen [at] gmail [dot] com (paicklen[at]gmail[dot]com) // Charcanizales [at] gmail [dot] com (Charcanizales[at]gmail[dot]com)
Dallas
Support Group Leaders: Jennifer Chavers and Amy Junod
Contact Information: (469) 688-5028 (Jennifer) // (214) 334-2450 (Amy)
Click here to find out information about the next meeting
Houston
Support Group Leader: Support Group Leader Opening
Contact Information:
San Antonio
Support Group Co-Leaders: Kim Dross and Kathy G
Contact Information: (210) 799-2466 (Kim) // katgusman783 [at] gmail [dot] com (katgusman783[at]gmail[dot]com)
Hampton Roads/Norfolk
Support Group Leader: Bonnie Elverum
Contact Information: (757) 268-4928 or elverum4 [at] gmail [dot] com (elverum4[at]gmail[dot]com)
Northern Virginia
Support Group Leader: Mary J
Contact Information: novasjogrensgroup [at] gmail [dot] com (novasjogrensgroup[at]gmail[dot]com)
Salem
Support Group Leader: Carol Watson
Contact Information: (540) 389-7503 or cmhwatson [at] comcast [dot] net (cmhwatson[at]comcast[dot]net)
Seattle Area
Support Group Leader: Susan Wallace
Contact Information: (206) 498-0330 or smw2452 [at] gmail [dot] com (smw2452[at]gmail[dot]com)
Madison Area
Support Group Leader: Nancy
Contact Information: suldalwi [at] gmail [dot] com (suldalwi[at]gmail[dot]com)
Click here to find 2023 Calendar of Meetings
Milwaukee Area
Support Group Leader: Support Group Leader Opening