Support Groups offer a place for people living with Sjögren’s to connect, share and learn about managing their daily lives with the disease. Led by volunteer patients across the country, these groups are a way to connect Sjögren’s patients within their communities or states and allow them to learn from one another by sharing their experiences, tips, and suggestions.
These groups provide:
- Guided topic discussions related to Sjögren’s
- Patient-to-patient sharing of experiences
- An opportunity to connect and exchange helpful coping techniques
- Knowledge of helpful resources
To find out if there is a support group in your area, check the listing below.
**Corporate or organizational requests to Support Group Leaders for the purpose of product sales, marketing, or of member solicitation (e.g., participation in opinion polls or research studies) are strictly prohibited. Any such requests must be approved through the Sjögren’s Foundation by contacting info [at] sjogrens [dot] org (info[at]sjogrens[dot]org).
Formerly the "Seacoast" Support Group, now expanded to include all of ME, NH & VT
We are currently seeking volunteer support group leaders to lead virtual meetings in Northern NE. Interested in learning more? Please review our support group information sheet here and email mchampigny [at] sjogrens [dot] org (Michele Champigny) if you feel this volunteer opportunity is a good match for you!
Support Group Contact:
Contact Information:
Next Meeting: TBD
**Meetings held virtually
Phoenix Area
Support Group Leader: Yolanda
Contact Information: azsjogrensgroup [at] gmail [dot] com (azsjogrensgroup[at]gmail[dot]com)
Next Meeting: Saturday, July 27, 2024 at 11:00am
**This is a virtual Meeting. Members, watch your email for instructions on how to RSVP and receive the link
We are currently seeking volunteer support group leaders for Northern California, Central Coast and an expanded LA group. Interested in learning more? Please review our support group information sheet here and email mchampigny [at] sjogrens [dot] org (Michele Champigny) if you feel this volunteer opportunity is a good match for you!
Greater Los Angeles/Southland
Support Group Leader: Susan B.
Contact Information: LAsjogrensgroup [at] yahoo [dot] com (LAsjogrensgroup[at]yahoo[dot]com)
Next Meeting: Saturday, August 10th, 10am-12pm (PT)
**This is a virtual Meeting. LA Area members will receive an email with a link to RSVP for the meeting.
San Diego
Support Group Leader: Madaline Pike
Contact Information: (858) 775-2059
San Francisco Bay Area
Support Group Leader: Meghan Khalsa and Lauren
Contact Information: (415) 699-4117 or megkhalsa [at] yahoo [dot] com (megkhalsa[at]yahoo[dot]com) // laurenmiranda [at] yahoo [dot] com (laurenmiranda[at]yahoo[dot]com)
Meeting Schedule: Meetings are scheduled for second Saturday, every 3 months.
**This is a virtual Meeting. Contact the support group leader to RSVP and receive the link.Click here to find 2024 Calendar of Meetings
Ft. Collins/Loveland
Support Group Leader: Mollee Reiber
Contact Information: (970) 302-1039 or preschoolmollee [at] yahoo [dot] com (preschoolmollee[at]yahoo[dot]com)
Meeting Schedule: Meetings are scheduled for second Saturday every 3 months from 9am-12pm (MT)
Meetings are in person. Contact the support group leader to RSVP and for meeting location information
Farmington
Support Group Leader: MaryBeth
Contact Information: (860) 569-6933
Next Meeting: Saturday, September 29, 2024 at 1:30pm (ET)
**This is a virtual Meeting. Contact the support group leader to RSVP and receive the link. Members, watch your email for more information and how to RSVP.
We are currently seeking volunteer support group leaders for Southern Florida (Fort Lauderdale/Miami) and Jacksonville areas. Interested in learning more? Please review our support group information sheet here and email mchampigny [at] sjogrens [dot] org (Michele Champigny) if you feel this volunteer opportunity is a good match for you!
Jacksonville
Support Group Leader: Support Group Leader position available
Contact Information:
Meeting Schedule: 2024 meetings in Jacksonville are cancelled until further notice as we seek a volunteer to lead this group
Lady Lake
Support Group Leader: Karen Marshall
Contact Information: (231) 972-3110 or kato1420 [at] gmail [dot] com (kato1420[at]gmail[dot]com)
Meeting Schedule: Meetings are held on the 4th Friday of every month. No meeting June, July or August.
Meetings are in person. Contact the support group leader to RSVP. Click here to find 2024 Calendar of Meetings
Orlando Area
Support Group Leaders: Linda Neall
Contact Information: (407) 446-3846 or lindaneall12 [at] gmail [dot] com (lindaneall12[at]gmail[dot]com)
Next Meeting: Saturday, July 27, 2024 at 1pm
Meetings are in person. Contact the support group leader to RSVP.
Tampa/Suncoast
Support Group Leader: Sharah
Contact Information: tampasjogrenssg [at] gmail [dot] com (tampasjogrenssg[at]gmail[dot]com)
Next Meeting: Meetings offered monthly alternating between Monday evenings and Thursday afternoons.
**This is a virtual Meeting. Members watch your email for further meeting information. Click here to find 2024 Calendar of Meetings
Atlanta Area
Support Group Leaders: Suzi Wixson and Lois Pippin
Contact Information: (770) 367-6062 or suziwixson [at] comcast [dot] net (suziwixson[at]comcast[dot]net) // (404) 373-1403 or Lspippin [at] mindspring [dot] com (Lspippin[at]mindspring[dot]com)
Meeting Schedule: Meetings held on the 3rd Saturday of every other month.
**This is a virtual Meeting. Contact the support group leader to RSVP and receive the link.Click here to find 2024 Calendar of Meetings
Support Group Leader: Kathi
Contact Information: hawaiisjogrensgroup [at] gmail [dot] com (hawaiisjogrensgroup[at]gmail[dot]com)
Meeting Schedule: Meetings are scheduled for the 2nd Tuesday of every three months.
**This is a virtual Meeting. Contact the support group leader to RSVP and receive the link.Click here to find 2024 Calendar of Meetings
Support Group Leader: Support Group Leader Vacancy. Interested in learning more? Please review our support group information sheet here and email mchampigny [at] sjogrens [dot] org (Michele Champigny) if you feel this volunteer opportunity is a good match for you!
Contact Information:
Chicago Area
Support Group Co-Leaders: Karen M and Elaine
Contact Information: klweis [at] yahoo [dot] com (klweis[at]yahoo[dot]com)
Next Meeting: Saturday, August 24, 2024 at 10am (CT)
**This is a virtual Meeting. Members watch your email for instructions to RSVP for the meeting.
Indianapolis
Support Group Contact: Vivian Kistler
Contact Information: (317) 408-2844 or vivkistler [at] yahoo [dot] com (vivkistler[at]yahoo[dot]com)
Meeting Schedule: Meetings held on the 4th Thursday of every month except November & December.
**This is a virtual Meeting. Contact the support group leader to RSVP and receive the link.Click here to find 2024 Calendar of Meetings
Greater Kansas City Area
Support Group Leaders: Joi L
Contact Information: kcsjogrensgroup [at] gmail [dot] com (kcsjogrensgroup[at]gmail[dot]com) or 913-908-8909
Meeting Schedule: Meetings held on the 1st Saturday of every 3rd month.
**This is a virtual Meeting. Contact the support group leader to RSVP and receive the link. Click here to find 2024 Calendar of Meetings
Baltimore
Support Group Leader: Renee Phillips
Contact Information: (410) 790-9822 or BaltimoreMDSjogrensGroup [at] gmail [dot] com (BaltimoreMDSjogrensGroup[at]gmail[dot]com)
Meeting Schedule: Meetings are scheduled for the 3rd Tuesday of every other month.
**This is a virtual Meeting. Contact the support group leader to RSVP and receive the link.Click here for our 2024 Calendar of Meetings
Montgomery
Support Group Leader: Bonnie
Contact Information: MontgomeryCtyMDSjogrensGroup [at] gmail [dot] com (MontgomeryCtyMDSjogrensGroup[at]gmail[dot]com)
Meeting Schedule: Meetings are scheduled for the 1st Sunday of every other month
(Exception dates for July and September due to Holidays)
**This is a virtual Meeting. Contact the support group leader to RSVP and receive the link. Click here for our 2024 Calendar of Meetings
Boston & Beyond- This virtual group serves members in all of Massachusetts and Northern RI
Support Group Leader: Lisa D.
Contact Information: lisadominico1111 [at] gmail [dot] com (lisadominico1111[at]gmail[dot]com)
Next Meeting: Saturday, June 22nd at 10:00-11:30 am (ET)
**This is a virtual Meeting. Massachusetts and Northern RI members, watch your email for further meeting information.
St. Clair County
Support Group Leader: Barbara Skovran
Contact Information: barbs09 [at] gmail [dot] com (barbs09[at]gmail[dot]com)
Meeting Schedule: Meetings are scheduled for the 2nd Wednesday of every other month beginning in January.
**This is a virtual Meeting. Contact the support group leader to RSVP and receive the link.Click here to find 2024 Calendar of Meetings
Virtual MN Support Group
Support Group Leaders: Marie MV and Lindsay N
Contact Information: mneveningsjogrens [at] gmail [dot] com (mneveningsjogrens[at]gmail[dot]com)
Meeting Schedule: Meetings are scheduled for the 1st Monday of every month.
**This is a virtual Meeting. Contact the support group leader to RSVP and receive the link.Click here to find 2024 Calendar of Meetings
Support Group Leader: Support Group Leader Opening
Contact Information:
Support Group Contact: Lauren
Contact Information: njsjogrensgroup [at] gmail [dot] com (njsjogrensgroup[at]gmail[dot]com)
Meeting Schedule: Virtual meetings are scheduled 5-6 times per year. Current members in NJ please watch your email for meeting dates and times, as well as instructions on how to RSVP.
Next Meeting: Wednesday, September 4, 2024 at 7pm
Support Group Contact: Andrea Dowdy
Contact Information: andrea [dot] dowdy [at] yahoo [dot] com (andrea[dot]dowdy[at]yahoo[dot]com)
Meeting Schedule: Meetings are scheduled for the 1st Saturday of every third month.
**This is a virtual Meeting. Contact the support group leader to RSVP and receive the link.Click here to find 2024 Calendar of Meetings
We are currently seeking volunteer support group leaders in New York State for NYC and Long Island. Interested in learning more Please review our support group information sheet here and email mchampigny [at] sjogrens [dot] org (Michele Champigny) if you feel this volunteer opportunity is a good match for you!
New York City Area
Interim Support Group Leader: Paula Yelsey
Contact Information: (301) 538-3422
New York City Area "20s & 30s" with Sjögren's
Support Group Leader: Paula Yelsey
Contact Information: (301) 538-3422
Upstate New York
Support Group Leader: Jen Austin
Contact Information: (716) 980-5980 or upstatenysjogrensgroup [at] gmail [dot] com (upstatenysjogrensgroup[at]gmail[dot]com)
Meeting Schedule: Meetings are scheduled for the 2nd Sunday of every month.
**This is a virtual Meeting. Contact the support group leader to RSVP and receive the link. Click here to find 2024 Calendar of Meetings
We are currently seeking volunteer support group leaders for North Carolina. Interested in learning more? Please review our support group information sheet here and email mchampigny [at] sjogrens [dot] org (Michele Champigny) if you feel this volunteer opportunity is a good match for you!
Central NC
Support Group Leader: Diane White
Contact Information: centralncsjogrensgroup [at] gmail [dot] com (centralncsjogrensgroup[at]gmail[dot]com)
Next Meeting: Thursday, September 20, 2024, 6:30-7:30pm
Meeting Schedule: Meetings take place the 3rd Thursday, every other month.
**This is a virtual Meeting. Central NC members, watch your email for more meeting information.
Columbus / Central Ohio
Support Group Leader: Gayle Wanamaker
Contact Information: Wanamakergayle [at] gmail [dot] com (Wanamakergayle[at]gmail[dot]com)
Meeting Schedule: Meetings will be held on the 3rd Wednesday of every other month beginning in January.
**This is a virtual Meeting. Contact the support group leader to RSVP and receive the link. Click here to find 2024 Calendar of Meetings
Northeast Ohio
Support Group Leader: Support Group Leader Opening
Contact Information:
Toledo Area
Support Group Leader: Judith Furlong
Contact Information: furlongja [at] gmail [dot] com (furlongja[at]gmail[dot]com)
Edmond
Support Group Leader: Sharon J Abrams
Contact Information: (405) 330-2356
Portland
Support Group Leader: Support Group Leader Opening
Contact Information:
Central Pennsylvania
Support Group Leader: Support Group Leader Opening
Contact Information:
Philadelphia
Support Group Leader: Barbara
Contact Information: (610) 653-4689 or MyPhillySjogrens [at] gmail [dot] com (MyPhillySjogrens[at]gmail[dot]com)
Support Group Contact: Danita N Calvert
Contact Information: scvirtualsjogrensgroup [at] gmail [dot] com (scvirtualsjogrensgroup[at]gmail[dot]com)
Meeting Schedule: Meetings are scheduled for the 3rd Wednesday of every other month.
**This is a virtual Meeting. Contact the support group leader to RSVP and receive the link. Click here to find 2024 Calendar of Meetings
Nashville
Support Group Leader: Vicki B
Contact Information: Baldwin [dot] vicki [at] yahoo [dot] com (Baldwin[dot]vicki[at]yahoo[dot]com)
Austin/Central Texas
Support Group Leaders: Paula Aicklen and Charlene
Contact Information: (214) 228-3678 or paicklen [at] gmail [dot] com (paicklen[at]gmail[dot]com) // Charcanizales [at] gmail [dot] com (Charcanizales[at]gmail[dot]com)
Next Meeting: Saturday, August 17th at 10:30 am (CT)
**This is a virtual Meeting. Austin Area members, watch your email for more meeting information.
Dallas
Support Group Leaders: Jennifer Chavers and Amy Junod
Contact Information: (469) 688-5028 (Jennifer) // (214) 334-2450 (Amy)
Next Meeting: Saturday, June 8th at 10:30 am (CT)
**This is a virtual Meeting. Dallas Area members, watch your email for more meeting information.
Houston
Support Group Leader: Support Group Leader Opening
Contact Information:
San Antonio
Support Group Co-Leaders: Kim Dross and Kathy G
Contact Information: (210) 799-2466 (Kim) // katgusman783 [at] gmail [dot] com (katgusman783[at]gmail[dot]com) (Kathy)
Meeting Schedule: Meetings are held on the 3rd Thursday of every other month
**This is a virtual Meeting. Contact the support group leader to RSVP and receive the link. Click here to find 2024 Calendar of Meetings
Central VA/Charlottesville
Support Group Leader: Mary Beth A
Contact Information: centralvasjogrens [at] gmail [dot] com (centralvasjogrens[at]gmail[dot]com) or 703-501-7462
Next Meeting: Saturday, October 19, 2024 10am (ET)
**Meeting to be held virtually. Contact the support group leader to RSVP and receive link to participate.
Hampton Roads/Norfolk
Support Group Leader: Bonnie Elverum
Contact Information: (757) 268-4928 or elverum4 [at] gmail [dot] com (elverum4[at]gmail[dot]com)
Next Meeting: Thursday, October 17, 2024. 5:30-6:30pm (ET)
**This is an in person meeting. Contact the support group leader to RSVP and get details on meeting location.
Northern Virginia
Support Group Leader: Mary J
Contact Information: novasjogrensgroup [at] gmail [dot] com (novasjogrensgroup[at]gmail[dot]com)
Next Meeting: Saturday, November 2, 2024, 11:30-1:30pm (ET)
**This is an in person meeting. Contact the support group leader to RSVP and receive location
Salem
Support Group Leader: Carol Watson
Contact Information: (540) 389-7503 or cmhwatson [at] comcast [dot] net (cmhwatson[at]comcast[dot]net)
Next Meeting: Salem members welcome at the Central VA virtual group meetings. No live meetings currently scheduled in Salem.
Seattle Area
Support Group Leader: Susan Wallace
Contact Information: (206) 498-0330 or smw2452 [at] gmail [dot] com (smw2452[at]gmail[dot]com)
Next Meeting: Wednesday, September 25, 2024, 6:30-8pm (PT)
**This is a virtual Meeting. Seattle Area members, watch your email for more meeting information.
Madison Area
Support Group Leader: Diana B.
Contact Information: Madisonsjogrensgroup [at] gmail [dot] com (Madisonsjogrensgroup[at]gmail[dot]com)
Next Meeting: Tuesday, October 15, 2024, 12:00-1:00pm (CT)
Meeting Schedule: Meetings take place the third Tuesday of every month, no meetings in August or December
**This is a virtual Meeting. Madison Area members, watch your email for more meeting information.