Support Groups offer a place for people living with Sjögren’s to connect, share and learn about managing their daily lives with the disease. Led by volunteer patients across the country, these groups are a way to connect Sjögren’s patients within their communities or states and allow them to learn from one another by sharing their experiences, tips, and suggestions.
These groups provide:
- Guided topic discussions related to Sjögren’s
- Patient-to-patient sharing of experiences
- An opportunity to connect and exchange helpful coping techniques
- Knowledge of helpful resources
To find out if there is a support group in your area, check the listing below.
**Corporate or organizational requests to Support Group Leaders for the purpose of product sales, marketing, or of member solicitation (e.g., participation in opinion polls or research studies) are strictly prohibited. Any such requests must be approved through the Sjögren’s Foundation by contacting info [at] sjogrens [dot] org (info[at]sjogrens[dot]org).
Support Group Contact: Liz Kray
Contact Information: (207) 475-7172
Phoenix Area
Support Group Leader: Yolanda Gales
Contact Information: (480) 547-9870
We are currently seeking volunteer support group leaders for Northern California and Central Coast. Interested in learning more? Please review our support group information sheet here and email mchampigny [at] sjogrens [dot] org (Michele Champigny) if you feel this volunteer opportunity is a good match for you!
Greater Los Angeles/Southland
Support Group Leader: Susan B.
Contact Information: LAsjogrensgroup [at] yahoo [dot] com (LAsjogrensgroup[at]yahoo[dot]com)
Click here to find 2023 Calendar of Meetings
San Diego
Support Group Leader: Madaline Pike
Contact Information: (858) 775-2059
Click here to find out information about the next meeting
San Francisco Bay Area
Support Group Leader: Lauren Miranda Gilbert and Meghan Khalsa
Contact Information: laurenmiranda [at] yahoo [dot] com (laurenmiranda[at]yahoo[dot]com) // 415-699-4117 or megkhalsa [at] yahoo [dot] com (megkhalsa[at]yahoo[dot]com)
Ft. Collins/Loveland
Support Group Leader: Mollee Reiber
Contact Information: (970) 302-1039
Click here to find out information about the next meeting
Farmington
Support Group Leader: Mary Beth Walter
Contact Information: (860) 569-6933
We are currently seeking volunteer support group leaders for Southern Florida (Fort Lauderdale/Miami) and Tampa areas. Interested in learning more? Please review our support group information sheet here and email mchampigny [at] sjogrens [dot] org (Michele Champigny) if you feel this volunteer opportunity is a good match for you!
Jacksonville
Support Group Leader: Mary Kovacs
Contact Information: (904) 262-1695
Click here to find 2023 Calendar of Meetings
Lady Lake
Support Group Leader: Karen Marshall
Contact Information: (352) 259-1309
Click here to find 2023 Calendar of Meetings
Orlando Area
Support Group Leaders: Linda Neall
Contact Information: (407) 446-3846
Atlanta Area
Support Group Leaders: Suzi Wixson and Lois Pippin
Contact Information: (770) 642-0323 or suziwixson [at] comcast [dot] net (suziwixson[at]comcast[dot]net) // (404) 373-1403 or Lspippin [at] mindspring [dot] com (Lspippin[at]mindspring[dot]com)
Support Group Leader: Kathi S.
Contact Information: info [at] chefkathy [dot] com (info[at]chefkathy[dot]com)
Support Group Leader: Kathy Ellis
Contact Information: (208) 921-0613
Chicago Area
Support Group Co-Leaders: Karen Markowicz
Contact Information: 847-212-4516 (Karen)
Indianapolis
Support Group Contact: Vivian Kistler
Contact Information: (317) 408-2844 or vivkistler [at] yahoo [dot] com (vivkistler[at]yahoo[dot]com)
Greater Kansas City Area
Support Group Leaders: Janine Bensman & Cindy Koshak
Contact Information: (913) 485-3942 (Janine) // (417) 880-8971 (Cindy)
Baltimore
Support Group Leader: Renee Phillips
Contact Information: (410) 790-9822 or BaltimoreMDSjogrensGroup [at] gmail [dot] com (BaltimoreMDSjogrensGroup[at]gmail[dot]com)
Click here to find out information about the next meeting
Montgomery
Support Group Leader: Bonnie Schneider
Contact Information: ronandbon [at] verizon [dot] net (ronandbon[at]verizon[dot]net)
Click here for our 2023 Calendar of Meetings
Prince George's & Southern Maryland
Support Group Leader: Taylor Coleman
Contact Information: (240) 346 - 3061 or SouthernMDSjogrensGroup [at] gmail [dot] com (SouthernMDSjogrensGroup[at]gmail[dot]com)
We are currently seeking volunteer support group leaders across Massachusetts including Boston, Worcester, and Springfield areas. Interested in learning more? Please review our support group information sheet here and email mchampigny [at] sjogrens [dot] org (Michele Champigny) if you feel this volunteer opportunity is a good match for you!
Boston Area
Support Group Leader: Dr. Mabi Singh
Contact Information: (617) 636-3931 or (617) 636-3932
Click here to find out information about the next meeting
St. Clair County
Support Group Leader: Barbara Skovran
Contact Information: (810) 637-8129
Click here to find 2023 Calendar of Meetings
Afternoon Support Group
Support Group Leader: Cynthia Neubecker
Contact Information: redduncan936 [at] gmail [dot] com (redduncan936[at]gmail[dot]com)
Click here to find 2023 Calendar of Meetings
Evening Support Group
Support Group Leaders: Marie Maes-Voreis and Lindsay Noble
Contact Information: mariemaesvoreis [at] gmail [dot] com (mariemaesvoreis[at]gmail[dot]com) (Marie) // lindsayannnoble [at] gmail [dot] com (lindsayannnoble[at]gmail[dot]com) (Lindsay)
Support Group Leader: Support Group Leader Opening
Contact Information:
Support Group Contact: Lauren U.
Contact Information: njsjogrensgroup [at] gmail [dot] com (njsjogrensgroup[at]gmail[dot]com)
Support Group Contact: Andrea Dowdy
Contact Information: (505) 695-4768
We are currently seeking volunteer support group leaders in New York State for NYC and Long Island. Interested in learning more Please review our support group information sheet here and email mchampigny [at] sjogrens [dot] org (Michele Champigny) if you feel this volunteer opportunity is a good match for you!
New York City Area
Interim Support Group Leader: Paula Yelsey
Contact Information: (301) 538-3422
Click here to find out information about the next meeting
New York City Area "20s & 30s" with Sjögren's
Support Group Leader: Paula Yelsey
Contact Information: (301) 538-3422
Click here to find out information about the next meeting
Upstate New York
Support Group Leader: Jen Austin
Contact Information: upstatenysjogrensgroup [at] gmail [dot] com (upstatenysjogrensgroup[at]gmail[dot]com) or (716) 980-5980
Durham
Support Group Leader: Nancy Carter
Contact Information: nancycarter24 [at] gmail [dot] com (nancycarter24[at]gmail[dot]com)
Click here to find out information about the next meeting
Charlotte
Support Group Leader: SS and Salivary Disorders Ctr at Carolinas Medical Center
SS and Salivary Disorders Ctr at Carolinas Medical Center will resume meetings in 2023.
Columbus / Central Ohio
Support Group Leader: Gayle Wanamaker
Contact Information: (614) 578-2823
Click here to find 2023 Calendar of Meetings
Northeast Ohio
Support Group Leader: Support Group Leader Opening
Contact Information:
Click here to find out information about the next meeting
Toledo Area
Support Group Leader: Judi Furlong, MD
Contact Information: (419) 824-1927
Click here to find out information about the next meeting
Edmond
Support Group Leader: Sharon Abrams
Contact Information: (405) 330-2356
Click here to for information about the September educational event
Portland
Support Group Leader: Support Group Leader Opening
Contact Information:
Click here to find out information about the next meeting
Central Pennsylvania
Support Group Leader: Support Group Leader Opening
Contact Information:
Philadelphia
Support Group Leader: Barbara
Contact Information: myphillysjogrens [at] gmail [dot] com (myphillysjogrens[at]gmail[dot]com)
Support Group Contact: Danita Calvert
Contact Information: scvirtualsjogrensgroup [at] gmail [dot] com (scvirtualsjogrensgroup[at]gmail[dot]com)
Nashville
Support Group Leader: Vicki Baldwin
Contact Information: (615) 243-4560
Click here to find out information about the next meeting
Austin/Central Texas
Support Group Leaders: Paula Aicklen and Charlene Canizales
Contact Information: (214) 228-3678 (Paula) // (512) 748-3520 (Charlene)
Click here to find out information about the next meeting
Dallas
Support Group Leaders: Jennifer Chavers and Amy Junod
Contact Information: 469-688-5028 (Jennifer) 214-334-2450 (Amy)
Click here to find out information about the next meeting
Houston
Support Group Leader: Support Group Leader Opening
Contact Information:
Click here to find out information about the next meeting
San Antonio
Support Group Leader: Kim Dross
Contact Information: (210) 799-2466
Hampton Roads/Norfolk
Support Group Leader: Bonnie Elverum
Contact Information: (757) 268-4928
Click here to find out information about the next meeting
Northern Virginia
Support Group Leader: Mary Ann Jefferson
Contact Information: (571) 278-8344
Click here to find out information about the next meeting
Salem
Support Group Leader: Carol Watson, RN
Contact Information: (540) 389-7503
Click here to find out information about the next meeting
Seattle Area
Support Group Leader: Susan Wallace
Contact Information: smw2452 [at] gmail [dot] com (smw2452[at]gmail[dot]com)
Madison Area
Support Group Leader: Nancy Johnson
Contact Information: suldalwi [at] gmail [dot] com (suldalwi[at]gmail[dot]com)
Click here to find 2023 Calendar of Meetings
Milwaukee Area
Support Group Leader: Support Group Leader Opening