Something we frequently hear from patients is that while no one plans to get an autoimmune disease, there is some sense of relief when they finally get their Sjögren's diagnosis. After what might be years of uncertainty, they can finally put a name to their disease, and start taking the necessary steps to living a full life with Sjögren's.
Resources handpicked for patients who are newly diagnosed and are looking for a place to begin.
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Your Future with Sjögren's
No matter how long you've been diagnosed, it is important to keep up with your disease since Sjögren's can evolve over time.
The Sjögren’s Foundation is dedicated to providing the most up-to-date information to patients and healthcare providers.
Family & Friends Information
Is someone you love affected by Sjögren's? Use these resources to find out how to best support them.
Sjögren's in Children
Sjögren's isn't only a disease for adults and can manifest different symptoms for pediatric patients.
Sjögren's in Men
The Foundation continues to expand our resources for men, as we are seeing more diagnosed with Sjogren’s.
Support Groups & Networks
There are over 65 Sjögren's support groups supported by the Foundation, including international and specialized support groups, as well as an online forum.
Clinical trials are designed to add to medical knowledge and most importantly, the results of these trials can make a difference in the care and treatment of Sjögren’s patients.
Living with Sjögren's Patient Survey
The Living with Sjögren’s patient survey was conducted by The Harris Poll on behalf of the Sjögren’s Foundation. This survey was designed to gain insight into the variety and severity of what adult Sjögren’s patients living in the U.S. experience and how the disease impacts their quality of life.
The Summary of Major Findings results sheds light on the experiences of patients, including physical symptoms, as well as the mental, emotional, and financial impact of the disease. The following data demonstrates the serious and systemic nature of Sjögren’s.
Living with Sjögren's Survey (PDF - 467 KB)