The Sjögren's Foundation is proud of the leadership role we have taken to encourage collaborations, break down barriers and move the field of Sjögren's forward.
Please follow the links below to learn more about the scientific initiatives that the Foundation is leading or involved with:
Sjögren's Foundation Clinical Practice Guidelines
An initiative to develop guidelines for the assessment and management of disease manifestations to improve the quality of care for Sjögren’s patients.
Sjögren's Foundation Clinical Trials Consortium
An international initiative comprised of experts representing multiple specialties, industry partners and Foundation staff whose mission is to increase the availability and accessibility of therapies for treating Sjögren’s.
ICD-10 Coding
A collaborative initiative to revise and update the ICD-10 code for Sjögren’s to be more representative of the disease.
Sjögren's Training and Education Platform (STEP)
A web-based, educational, platform developed by the Sjögren’s Foundation to train investigators involved with clinical trials in Sjögren’s.
Sjögren's Foundation Research Grants
Funding opportunities, available to both junior and senior-level investigators, conducting basic and scientific research on Sjögren’s.
Sjögren's Classification Criteria
The criteria used in Sjögren’s clinical trials to determine patient eligibility.
FNIH Biomarkers Consortium Sjögren's Working Group
A project to prioritize challenges and develop plans for a partnership to address the major needs of the Sjögren’s drug development community.
International Collaborations:
International Sjögren's Network (ISN)
A network of patient groups, representing various countries, who collaborate on issues of importance to Sjögren’s patients.
HarmonicSS
A project with the vision of creating an international network and alliance of partners and cohorts entrusted with the mission of addressing the unmet needs in Sjögren’s through a multidimensional approach.
NECESSITY
A project to identify sensitive clinical endpoints that could be used in clinical trials to determine the effectiveness of new Sjögren’s medicines.
OMERACT
A project to identify and prioritize symptom domains that should be consistently evaluated in Sjögren’s clinical trials and aspects of domains and outcome measures that should be part of a concerted research agenda.