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Sjögren's Awareness Day 24 - Debra

Sjögren's Awareness Day 24 - Debra

On hard days it’s important to not push it. My anxiety of having a flare up has inhibited my social life. I’ve learned it is ok to say no, it is ok to take a break for a while even if it isn’t convenient for everyone in the group, it is ok to say I DO NOT FEEL WELL ENOUGH TO DO THIS or THAT! I’ve learned that it is ok to be the one that sits on the sidelines, I don’t have to be the one that does everything for my family. If I sit back it doesn’t mean I am lazy or that I don’t care what festivities are occurring around me.

Click Here to Read More of Debra's Story


Share Your Story

April is Sjögren’s Awareness Month, a time when we come together as a community to amplify the voices of those living with Sjögren’s disease and bring much-needed attention to this complex and often misunderstood disease. Through storytelling, we want to increase awareness of the disease, unite the community and shine a spotlight on the experiences of those living with Sjögren’s. You can find more stories by scrolling down.

This year, we’re celebrating the month with a special focus on the theme ‘Connect, Learn, & Thrive,’ highlighting the ways our community grows stronger through shared experiences and support. Each day in April, we’ll showcase a new story on our website and social media.

Click Here to Share Your Story

We hope you will join us in educating the public about Sjögren’s and encourage you to use Sjögren's Awareness Month as a way to talk about the disease. Every day is an opportunity to start a conversation about living with Sjögren’s and how it affects you. Help educate the world that this is a serious disease and remember, the more others understand, the more support you can find. 

Click Here To Learn More About Sjögren's Awareness Month

 


Patient Stories