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Elaine K. Harris Interview with Janet Church
… used her past community involvement to start a local support group with only one other Sjögren’s patient that she … the secretary of her doctor. She then slowly grew that support group into the Sjögren’s Foundation. Today, the … from doctors through the foundation newsletter, local support group meetings and the National Patient Conferences. …
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Sjögren's Awareness Day 5 - Cynthia
… and prioritizing self care. Where/who do you go to for support with Sjögren's?: I feel supported joining my once a month Sjögrens Boston and Beyond support group meetings. My Rheumatology visits are helpful … diagnosed?: Build a strong support system through patient groups, and continue to communicate with your doctors. What …
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Sjögren's Awareness Day 17 - Barbara
… Sjögren’s Foundation and connected with a local Sjögren’s support group led by another RN and gained a plethora of … dentists since I was diagnosed. Where/who do you go to for support with Sjögren's?: I keep up with the literature about Sjögren’s but my local support group disbanded and I’ve not been able to find …
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Sjögren's Awareness Day 24 - Debra
… looks like with Sjögren’s. Where/who do you go to for support with Sjögren's?: Thankfully my spouse is an … as a disability. Lastly, you are not in this alone, seek support, whether it be counseling, support groups, education is also key. You are not a hypochondriac …
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Sjögren's Awareness Day 14 - Kay
… your journey with SjD?: To be honest, I had no idea that support groups for Sjögren’s even existed. But ever since I … Connecting with the community and having strong medical support has helped me feel seen, supported, and empowered to …
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Sjögren's Awareness Day 1 - Shelby
… tricks for managing symptoms. Where/who do you go to for support with Sjögren's?: The Sjögren's Foundation has also … in learning about Sjögren's. I've found some great support groups that help me feel less alone. I'm also lucky …
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2019 Highlights From the Sjögren’s Foundation
… impact is being made by YOU. It is your generosity and support that has made this past year's achievements possible. … in the number of applications received. Providing Patient Support & Sjögren's Education In April, over 550 people … OH. The Foundation continues to support 65 local support groups and Awareness Ambassadors throughout the U.S. The …
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2024 in Review: Letter from Sjögren's Foundation CEO, Janet E. Church
… to the field. This year we also increased funding in support of Foundation research grants provided to clinical … this disease. That’s why our programs—ranging from support groups and patient education events to online …
