Toyia
Patient-to-patient topic:
Muscle Pain and Sjögren's.
What do you wish you knew when first dealing with this symptom/situation?
That it can occur all over the body.
What are the top 3 over-the-counter products or tools you use when dealing with this symptom/situation?
Systane for dry eyes and Nivea for moisturizing dry skin.
What is your best advice for another patient dealing with this symptom/ situation?
Take it easy and always report new symptoms to the doctor.
In a few short sentences, please tell us your story with this symptom and anything additional for advice for another patient going through something similar.
Sjögren's has impacted my life with muscle and body pains, fatigue, anxiety and fear. During a flare up, it is difficult to move and focus. New symptoms occur often and when it does it creates heightened anxiety because I am wondering how it will affect me and for how long. To combat anxiety, I do deep breathing exercises which helps to calm me when I become overwhelmed with worry. I wish more people could be educated of the impact of Sjögren's to have a better understanding of what sufferers go through.
Please finish the following sentence: "Sjögren's has taught me..."
..that I should listen to my body. Not to overextend myself and to pace my activities.
What are your most difficult symptoms?
Muscle aches and body pains
How has Sjögren's impacted your life (either physically, emotionally, financially)?
My anxiety is extremely turbulent.
How do you effectively cope with the complexity of symptoms?
Still learning my triggers, but I am progressing as I learn each one.
What do you wish people knew about your Sjögren’s?
That it is a complex disease.
How do you incorporate self-care with managing Sjögren's?
I now do deep breathing exercises to control anxiety about my illness.
What is your go-to Sjögren's product?
I use eye drops multiple times a day.
What’s your best Sjögren’s tip?
Pay attention to your body and change eating habits.
Toyia
Patient-to-patient topic:
Muscle Pain and Sjögren's.
What do you wish you knew when first dealing with this symptom/situation?
That it can occur all over the body.
What are the top 3 over-the-counter products or tools you use when dealing with this symptom/situation?
Systane for dry eyes and Nivea for moisturizing dry skin.
What is your best advice for another patient dealing with this symptom/ situation?
Take it easy and always report new symptoms to the doctor.
In a few short sentences, please tell us your story with this symptom and anything additional for advice for another patient going through something similar.
Sjögren's has impacted my life with muscle and body pains, fatigue, anxiety and fear. During a flare up, it is difficult to move and focus. New symptoms occur often and when it does it creates heightened anxiety because I am wondering how it will affect me and for how long. To combat anxiety, I do deep breathing exercises which helps to calm me when I become overwhelmed with worry. I wish more people could be educated of the impact of Sjögren's to have a better understanding of what sufferers go through.
Please finish the following sentence: "Sjögren's has taught me..."
..that I should listen to my body. Not to overextend myself and to pace my activities.
What are your most difficult symptoms?
Muscle aches and body pains
How has Sjögren's impacted your life (either physically, emotionally, financially)?
My anxiety is extremely turbulent.
How do you effectively cope with the complexity of symptoms?
Still learning my triggers, but I am progressing as I learn each one.
What do you wish people knew about your Sjögren’s?
That it is a complex disease.
How do you incorporate self-care with managing Sjögren's?
I now do deep breathing exercises to control anxiety about my illness.
What is your go-to Sjögren's product?
I use eye drops multiple times a day.
What’s your best Sjögren’s tip?
Pay attention to your body and change eating habits.