Kyaira 29 (Diagnosed at 27)
Please finish the following sentence: "Sjögren's has taught me...":
That it is ok to say “No”. It is a complete sentence.
What are your most difficult symptoms?:
Dry mouth, fatigue and facial swelling
How has Sjögren's impacted your life (either physically, emotionally, financially)?:
My facial swelling affected my self esteem. I felt so ugly.
How do you effectively cope with the complexity of symptoms?:
I make sure to rest as much as possible and remind myself to cut myself a break. I join groups of alike peers to vent and support others in a safe space.
What do you wish people knew about your Sjögren’s?:
That my symptoms are not an exaggeration.
How do you incorporate self-care with managing Sjögren's?:
I make sure to dedicate at least one day of self care and low maintenance to myself per each work week.
What is your go-to Sjögren's product?:
Dry mouth discs and eye drops
What’s your best Sjögren’s tip?:
Create a strong support system. Bad days don’t last that long when you have one.
To learn more about Sjögren's Foundation Support Groups click here
Kyaira 29 (Diagnosed at 27)
Please finish the following sentence: "Sjögren's has taught me...":
That it is ok to say “No”. It is a complete sentence.
What are your most difficult symptoms?:
Dry mouth, fatigue and facial swelling
How has Sjögren's impacted your life (either physically, emotionally, financially)?:
My facial swelling affected my self esteem. I felt so ugly.
How do you effectively cope with the complexity of symptoms?:
I make sure to rest as much as possible and remind myself to cut myself a break. I join groups of alike peers to vent and support others in a safe space.
What do you wish people knew about your Sjögren’s?:
That my symptoms are not an exaggeration.
How do you incorporate self-care with managing Sjögren's?:
I make sure to dedicate at least one day of self care and low maintenance to myself per each work week.
What is your go-to Sjögren's product?:
Dry mouth discs and eye drops
What’s your best Sjögren’s tip?:
Create a strong support system. Bad days don’t last that long when you have one.
To learn more about Sjögren's Foundation Support Groups click here