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History
… used her past community involvement to start a local support group with the only other Sjögren’s patient that she … determined to simply meet other patients and start a support group, she ended up achieving so much more, growing … Foundation. The next five years saw the Foundation grow – groups and chapters formed across the country, international …
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International Sjögren's Network
… from around the world, also was an opportunity for patient groups to meet and discuss how best to collectively work … (SS)'. SI works through local groups called Sjögren's Support Group (SSG) for empowering patients through … a forum for interaction with healthcare professionals. Support in terms of counseling, lifestyle management tips …
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A letter from your CEO, Steven Taylor: 2020 Sjögren's Foundation Highlights
… has been able to continue providing valuable and needed support to all Sjögren’s patients. It is because of our … are a few highlights from 2020 that show how valuable you support is and how together, we are make a real difference in … support group leaders to provide online virtual support groups. The Foundation website, www.sjogrens.org , also …
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Sjögren's in Children
… on childhood Sjögren's, including information on the support group. Overlapping Diseases As with adults, children … a healthy lifestyle including staying active. Pediatric Support Group Our support group for children living with Sjögren's in the U.S. …
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Sjögren's Foundation 2021 Impact
… we did all of this while continuing to provide valuable support to our patients and families, especially as we … Sjögren's. Exploring Sjögren's Season 2 Providing Support to Sjögren's Patients The Sjögren's Foundations manage 62 support groups and 41 of them held virtual ZOOM meetings during the …
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Online Patient Support during Covid-19
… Online Patient Support during Covid-19 The Foundation understands how … this year has been for and how helpful patient to patient support can be. As we continue to navigate the Covid-19 … and safety of patients, many Sjögren’s Foundation support groups, including groups specifically for men and young …
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Staff
… led the National Coalition of Autoimmune Patient Groups; and worked with Congress to obtain research funding … of Directors to cultivate donors and build philanthropic support. Ben also plays a leading role in overseeing the … including our 65 S upport Groups and over 100 patient support volunteers (telephone contact volunteers). These …
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Sjögren's Foundation 2023 Impact
… we are immensely proud of what we have achieved to support and educate patients and to drive change in the … The new conferences strategically expanded our presence in support of our multispecialty education efforts and brought awareness and education to large groups of neurologists, pulmonologists, nurse practitioners …