How has Sjögren's affected your life (either physically, emotionally, financially)?:
Sjögren's had had the biggest impact on my physical health. Fatigue has forced me to modify a number of activities and seek help for others (such as using house cleaners).
How has connecting with the Sjögren's community or others living with Sjögren's Disease affected your journey with SjD?:
I love my Sjögren's friends! We check in with each other via text and calls to follow up on doctor and dental appointments, test results, and just to let each other know we are there for them.
Where/who do you go to for support with Sjögren's?:
I go to other Sjögren's patients for support. My rheumatologist is also wonderful. I leave appointments feeling better mentally.
What does it mean to "thrive" while living with Sjögren's?:
Don't let Sjögren's be the first and last thing you think of every day. Enjoy the people around you and focus on the good things in your life.
How do you incorporate self-care with managing Sjögren's?:
I take charge of the things in my control - eating healthy, exercise, and a positive attitude. And when I'm having a bad day, I don't feel guilty about doing nothing or staying in my pajamas all day.
What inspires you to keep going on hard days?:
The knowledge that "this too shall pass. " Tomorrow is a new day.
What’s your best Sjögren’s tip?:
Live your best life! You are much more than your disease. Take that trip, go on that hike, meet your friends for dinner, take a fun class. Don't be afraid to live!
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Click Here to Learn More About Sjögren's Awareness Month
How has Sjögren's affected your life (either physically, emotionally, financially)?:
Sjögren's had had the biggest impact on my physical health. Fatigue has forced me to modify a number of activities and seek help for others (such as using house cleaners).
How has connecting with the Sjögren's community or others living with Sjögren's Disease affected your journey with SjD?:
I love my Sjögren's friends! We check in with each other via text and calls to follow up on doctor and dental appointments, test results, and just to let each other know we are there for them.
Where/who do you go to for support with Sjögren's?:
I go to other Sjögren's patients for support. My rheumatologist is also wonderful. I leave appointments feeling better mentally.
What does it mean to "thrive" while living with Sjögren's?:
Don't let Sjögren's be the first and last thing you think of every day. Enjoy the people around you and focus on the good things in your life.
How do you incorporate self-care with managing Sjögren's?:
I take charge of the things in my control - eating healthy, exercise, and a positive attitude. And when I'm having a bad day, I don't feel guilty about doing nothing or staying in my pajamas all day.
What inspires you to keep going on hard days?:
The knowledge that "this too shall pass. " Tomorrow is a new day.
What’s your best Sjögren’s tip?:
Live your best life! You are much more than your disease. Take that trip, go on that hike, meet your friends for dinner, take a fun class. Don't be afraid to live!
Click Here to Return to Stories
Click Here to Learn More About Sjögren's Awareness Month