Natalia
Patient-to-patient topic:
Pregnancy and Sjögren's.
What do you wish you knew when first dealing with this symptom/situation?
When I first learned about the potential effects of Sjögren's on my pregnancy, I wish I had known about the importance of specialized care and monitoring for autoimmune conditions. Understanding the risks of SSA antibodies crossing the placenta and the possible heart complications for the baby early on would have helped me better prepare and advocate for both our health from the start.
What are the top 3 over-the-count products or tools you use when dealing with this symptom/situation?
1. High-quality eye drops for managing dry eyes.
2. Special mouth moisturizing gels to relieve dry mouth.
3. A well-reviewed prenatal vitamin that supports overall health, adjusted for autoimmune needs.
What is your best advice for another patient dealing with this symptom/ situation?
Find a healthcare provider who understands autoimmune diseases and their implications on pregnancy. Proactive monitoring and care can make a significant difference.
In a few short sentences, please tell us your story with this symptom and anything additional for advice for another patient going through something similar.
Navigating pregnancy with Sjögren's has been one of the most challenging phases of my life. The fatigue, joint pain, and dryness are intensified, and the anxiety about my baby's health due to SSA antibodies is ever-present. My advice is to not underestimate the value of a supportive medical team and to educate yourself as much as possible about how Sjögren's can impact your pregnancy.
Please finish the following sentence: "Sjögren's has taught me..."
That resilience and advocacy are crucial. It's essential to speak up for your health needs and ensure you and your baby receive the best possible care.
What are your most difficult symptoms?
The most difficult symptoms have been the fatigue and the worry about my baby's health due to the SSA antibodies.
What do you wish people knew about your Sjögren’s?
Sjögren's is not just about dry eyes and mouth. It's a serious condition that can significantly affect major life events, including pregnancy.
How do you incorporate self-care with managing Sjögren's?
Self-care involves staying hydrated, getting adequate rest, and using moisturizing products regularly.
How has Sjögren's impacted your life (either physically, emotionally, financially)?
Physically, Sjögren's makes everyday activities more challenging. Emotionally, it adds a layer of anxiety, especially during pregnancy. Financially, the cost of specialized healthcare and frequent treatments has been significant.
What is your go-to Sjögren's product?
My go-to product is a high-quality eye drop that provides lasting relief without irritating my eyes.
What’s your best Sjögren’s tip?
Always keep a water bottle and moisturizing products handy.
Natalia
Patient-to-patient topic:
Pregnancy and Sjögren's.
What do you wish you knew when first dealing with this symptom/situation?
When I first learned about the potential effects of Sjögren's on my pregnancy, I wish I had known about the importance of specialized care and monitoring for autoimmune conditions. Understanding the risks of SSA antibodies crossing the placenta and the possible heart complications for the baby early on would have helped me better prepare and advocate for both our health from the start.
What are the top 3 over-the-count products or tools you use when dealing with this symptom/situation?
1. High-quality eye drops for managing dry eyes.
2. Special mouth moisturizing gels to relieve dry mouth.
3. A well-reviewed prenatal vitamin that supports overall health, adjusted for autoimmune needs.
What is your best advice for another patient dealing with this symptom/ situation?
Find a healthcare provider who understands autoimmune diseases and their implications on pregnancy. Proactive monitoring and care can make a significant difference.
In a few short sentences, please tell us your story with this symptom and anything additional for advice for another patient going through something similar.
Navigating pregnancy with Sjögren's has been one of the most challenging phases of my life. The fatigue, joint pain, and dryness are intensified, and the anxiety about my baby's health due to SSA antibodies is ever-present. My advice is to not underestimate the value of a supportive medical team and to educate yourself as much as possible about how Sjögren's can impact your pregnancy.
Please finish the following sentence: "Sjögren's has taught me..."
That resilience and advocacy are crucial. It's essential to speak up for your health needs and ensure you and your baby receive the best possible care.
What are your most difficult symptoms?
The most difficult symptoms have been the fatigue and the worry about my baby's health due to the SSA antibodies.
What do you wish people knew about your Sjögren’s?
Sjögren's is not just about dry eyes and mouth. It's a serious condition that can significantly affect major life events, including pregnancy.
How do you incorporate self-care with managing Sjögren's?
Self-care involves staying hydrated, getting adequate rest, and using moisturizing products regularly.
How has Sjögren's impacted your life (either physically, emotionally, financially)?
Physically, Sjögren's makes everyday activities more challenging. Emotionally, it adds a layer of anxiety, especially during pregnancy. Financially, the cost of specialized healthcare and frequent treatments has been significant.
What is your go-to Sjögren's product?
My go-to product is a high-quality eye drop that provides lasting relief without irritating my eyes.
What’s your best Sjögren’s tip?
Always keep a water bottle and moisturizing products handy.