Stephanie 62 (Diagnosed at 59)
Please finish the following sentence: "Sjögren's has taught me...":
That I need to give myself grace and allow for those good as well as the bad days and to preserve through all my days.
What are your most difficult symptoms?:
The most difficult symptoms I have are fatigue, trouble sleeping and brain fog.
How has Sjögren's impacted your life (either physically, emotionally, financially)?:
It was taken a toll on my emotional state. I am a substitute teacher and some days I feel like a failure due to the brain fog. That creates insecurities.
How do you effectively cope with the complexity of symptoms?:
I rely on my wonderful doctors as well as reading and keeping up with the latest information about Sjögren’s.
What do you wish people knew about your Sjögren’s?:
Just because I look good doesn’t mean that I feel good and that brain fog is real and not just a made up symptom.
How do you incorporate self-care with managing Sjögren's?:
I walk daily, eat a healthy diet, try to keep a good bedtime routine as well as keeping all my doctors, dentist and eye appointments. Faith and pray also keep me grounded in my Sjögren’s journey.
What is your go-to Sjögren's product?:
Nivea dry skin lotion! Nothing really helps with the dry skin but it sure works well!
What’s your best Sjögren’s tip?:
Live life to the fullest and don’t be afraid to share about your difficulties.
Click Here to Learn More About Brain Fog
Stephanie 62 (Diagnosed at 59)
Please finish the following sentence: "Sjögren's has taught me...":
That I need to give myself grace and allow for those good as well as the bad days and to preserve through all my days.
What are your most difficult symptoms?:
The most difficult symptoms I have are fatigue, trouble sleeping and brain fog.
How has Sjögren's impacted your life (either physically, emotionally, financially)?:
It was taken a toll on my emotional state. I am a substitute teacher and some days I feel like a failure due to the brain fog. That creates insecurities.
How do you effectively cope with the complexity of symptoms?:
I rely on my wonderful doctors as well as reading and keeping up with the latest information about Sjögren’s.
What do you wish people knew about your Sjögren’s?:
Just because I look good doesn’t mean that I feel good and that brain fog is real and not just a made up symptom.
How do you incorporate self-care with managing Sjögren's?:
I walk daily, eat a healthy diet, try to keep a good bedtime routine as well as keeping all my doctors, dentist and eye appointments. Faith and pray also keep me grounded in my Sjögren’s journey.
What is your go-to Sjögren's product?:
Nivea dry skin lotion! Nothing really helps with the dry skin but it sure works well!
What’s your best Sjögren’s tip?:
Live life to the fullest and don’t be afraid to share about your difficulties.
Click Here to Learn More About Brain Fog