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We are proud to share that Nature Reviews Rheumatology has published the manuscript formalizing the international consensus to change Sjögren’s syndrome to Sjögren’s disease. This is a pivotal moment for the entire Sjögren’s community.

For any major scientific initiative, especially one that impacts clinical practice and terminology, publication in a peer-reviewed journal is critical. This step ensures the name change is formally accepted internationally by medical organizations, research institutions, and academic institutions, and paves the way for widespread adoption in research, diagnosis, treatment, and education.

This newly published manuscript represents the culmination of years of advocacy, research, and collaboration. Retiring the term "syndrome" isn’t just a shift in language, it’s a meaningful correction that better reflects the seriousness of the disease and validates the lived experiences of millions around the world.

Read more on our blog: https://sjogrens.org/blog/2025/name-change-to-sjogrens-disease-published-in-nature-reviews-rheumatology 

Read the published manuscript: https://www.nature.com/articles/s41584-025-01268-z

Note: In the United States, the term Sjögren’s disease will retain the possessive form (Sjögren's), with or without the umlaut (ö), as is commonly used in U.S. medical literature, healthcare records, patient advocacy, healthcare communications and at medical institutions.