Support Groups offer a place for people living with Sjögren’s to connect, share and learn about managing their daily lives with the disease. Led by volunteer patients across the country, these groups are a way to connect Sjögren’s patients within their communities or states and allow them to learn from one another by sharing their experiences, tips, and suggestions.
These groups provide:
- Guided topic discussions related to Sjögren’s
- Patient-to-patient sharing of experiences
- An opportunity to connect and exchange helpful coping techniques
- Knowledge of helpful resources
To find out if there is a support group in your area, check the listing below.
**Corporate or organizational requests to Support Group Leaders for the purpose of product sales, marketing, or of member solicitation (e.g., participation in opinion polls or research studies) are strictly prohibited. Any such requests must be approved through the Sjögren’s Foundation by contacting info [at] sjogrens [dot] org (info[at]sjogrens[dot]org).
Formerly the "Seacoast" Support Group, now expanded to include all of ME, NH & VT
We are currently seeking volunteer support group leaders to lead virtual meetings in Northern NE. Interested in learning more? Please review our support group information sheet here and email mchampigny [at] sjogrens [dot] org (Michele Champigny) if you feel this volunteer opportunity is a good match for you!
Support Group Contact:
Contact Information:
Next Meeting: TBD
**Meetings held virtually
Phoenix Area
Support Group Leader: Yolanda
Contact Information: azsjogrensgroup [at] gmail [dot] com (azsjogrensgroup[at]gmail[dot]com)
Next Meeting: Meetings held approximately 4 times per year. Schedule Varies.
**This is a virtual Meeting. Members living in the Phoenix area, watch your email for meeting information and instructions on how to RSVP.
We are currently seeking volunteer support group leaders for Northern California, San Diego and Central Coast. Interested in learning more? Please review our support group information sheet here and email mchampigny [at] sjogrens [dot] org (Michele Champigny) if you feel this volunteer opportunity is a good match for you!
Greater Los Angeles/Southland
Support Group Leader: Susan B.
Contact Information: LAsjogrensgroup [at] yahoo [dot] com (LAsjogrensgroup[at]yahoo[dot]com)
Meeting Schedule: 4 Saturday meetings per year, Every 3 months, February-November. 10am-12pm (PT)
**This is a virtual Meeting. Members living in the Greater LA/Southland area, please watch your email for meeting information and instructions on how to RSVP
San Francisco Bay Area
Support Group Leader: Meghan Khalsa and Lauren
Contact Information: (415) 699-4117 or megkhalsa [at] yahoo [dot] com (megkhalsa[at]yahoo[dot]com) // laurenmiranda [at] yahoo [dot] com (laurenmiranda[at]yahoo[dot]com)
Meeting Schedule: Meetings are scheduled for first Saturday, every 3 months. 10am-12pm (PT)
**This is a virtual Meeting. Members living in the San Francisco Bay area, please watch your email for meeting information and instructions on how to RSVP
We are currently seeking a volunteer support group leader for a virtual group in Colorado. Interested in learning more? Please review our support group information sheet here and email mchampigny [at] sjogrens [dot] org (Michele Champigny) if you feel this volunteer opportunity is a good match for you!
Ft. Collins/Loveland
Support Group Leader: Mollee Reiber
Contact Information: (970) 302-1039 or preschoolmollee [at] yahoo [dot] com (preschoolmollee[at]yahoo[dot]com)
Meeting Schedule: Meetings are scheduled for second Saturday every 3 months from 9am-12pm (MT)
**Meetings are in person. Members living in the Fort Collins/Loveland area, watch your email for meeting information and instructions on how to RSVP.
Hartford/Farmington
Support Group Leader: MaryBeth
Contact Information: (860) 569-6933
Next Meeting: Meetings held approximately 4 times per year. Schedule Varies.
**This is a virtual Meeting. Members living in Hartford/Farmington area, watch your email for meeting information and instructions on how to RSVP.
We are currently seeking volunteer support group leaders for Southern Florida (Fort Lauderdale/Miami) and Jacksonville areas. Interested in learning more? Please review our support group information sheet here and email mchampigny [at] sjogrens [dot] org (Michele Champigny) if you feel this volunteer opportunity is a good match for you!
Jacksonville
Support Group Leader: Support Group Leader position available
Contact Information:
Meeting Schedule: Meetings in Jacksonville are cancelled until further notice as we seek a volunteer to lead this group
Lady Lake
Support Group Leader: Karen Marshall
Contact Information: (231) 972-3110 or kato1420 [at] gmail [dot] com (kato1420[at]gmail[dot]com)
Meeting Schedule: Meetings are held on the 4th Friday of every month. 10-11:30am (ET) No meetings in the months of June, July or August.
**These are in person meetings. Members living in the Lady Lake area, watch your email for meeting information and instructions on how to RSVP.
Orlando Area
Support Group Leaders: Linda Neall
Contact Information: (407) 446-3846 or lindaneall12 [at] gmail [dot] com (lindaneall12[at]gmail[dot]com)
Next Meeting: Meetings held approximately 6 times per year. Schedule Varies.
Most Meetings are in person, occasionally held virtual. Members living in Orlando/Claremont area, please watch your email for meeting information and instructions on how to RSVP
Tampa/Suncoast
Support Group Leader: Sharah
Contact Information: tampasjogrenssg [at] gmail [dot] com (tampasjogrenssg[at]gmail[dot]com)
Next Meeting: Meeting are scheduled on the 2nd Thursday of every month, 3-4pm (ET)
**This is a virtual Meeting. Members living in Tampa/Suncoast area, please watch your email for meeting information and instructions on how to RSVP
Atlanta Area
Support Group Leaders: Suzi Wixson and Lois Pippin
Contact Information: (770) 367-6062 or suziwixson [at] comcast [dot] net (suziwixson[at]comcast[dot]net) // (404) 373-1403 or Lspippin [at] mindspring [dot] com (Lspippin[at]mindspring[dot]com)
Meeting Schedule: Meetings held on the 3rd Saturday of every month. 12:30-2:30pm (ET) No meeting in December.
**This is a virtual Meeting. Members living in the greater Atlanta area, please watch your email for meeting information and instructions on how to RSVP
Support Group Leader: Kathi
Contact Information: hawaiisjogrensgroup [at] gmail [dot] com (hawaiisjogrensgroup[at]gmail[dot]com)
Meeting Schedule: Meetings are scheduled for the 2nd Tuesday of every three months. 7-9pm (HST)
**This is a virtual Meeting. Members living on the Hawaiian Islands, please watch your email for meeting information and instructions on how to RSVP
Support Group Leader: Support Group Leader Vacancy. Interested in learning more? Please review our support group information sheet here and email mchampigny [at] sjogrens [dot] org (Michele Champigny) if you feel this volunteer opportunity is a good match for you!
Contact Information:
Chicago Area
Support Group Co-Leaders: Karen M and Elaine
Contact Information: klweis [at] yahoo [dot] com (klweis[at]yahoo[dot]com)
Next Meeting: Approximately 4 meetings held per year. Schedule varies.
**This is a virtual Meeting. Members living in the Chicago area, please watch your email for meeting information and instructions on how to RSVP
Indianapolis
Support Group Contact: Vivian Kistler
Contact Information: (317) 408-2844 or vivkistler [at] yahoo [dot] com (vivkistler[at]yahoo[dot]com)
Meeting Schedule: Meetings are scheduled on the 4th Thursday of every month except Nov. & Dec. 5:30-7pm (ET)
**This is a virtual Meeting. Members living in the Indianapolis area, please watch your email for meeting information and instructions on how to RSVP
Greater Kansas City Area
Support Group Leaders: Joi L
Contact Information: kcsjogrensgroup [at] gmail [dot] com (kcsjogrensgroup[at]gmail[dot]com) or 913-908-8909
Meeting Schedule: Meetings are scheduled on the 1st Saturday of every 3rd month. 10:-11:30am (CT)
**This is a virtual Meeting. Members living in the Greater Kansas City area, please watch your email for meeting information and instructions on how to RSVP
Baltimore
Support Group Leader: Renee Phillips
Contact Information: (410) 790-9822 or BaltimoreMDSjogrensGroup [at] gmail [dot] com (BaltimoreMDSjogrensGroup[at]gmail[dot]com)
Meeting Schedule: Meetings are scheduled for the 3rd Tuesday of every other month. 7-8:30pm (ET)
****This is a virtual Meeting. Members living in the Baltimore area, please watch your email for meeting information and instructions on how to RSVP
Montgomery
Support Group Leader: Bonnie
Contact Information: MontgomeryCtyMDSjogrensGroup [at] gmail [dot] com (MontgomeryCtyMDSjogrensGroup[at]gmail[dot]com)
Meeting Schedule: Meetings are scheduled for the 1st Sunday of every other month. 1-3pm (ET)
**This is a virtual Meeting. Members living in the Montgomery County area, please watch your email for meeting information and instructions on how to RSVP
Boston & Beyond- This virtual group serves members in all of Massachusetts and Northern RI
Support Group Leader: Lisa D.
Contact Information: lisadominico1111 [at] gmail [dot] com (lisadominico1111[at]gmail[dot]com)
Next Meeting: Meetings are scheduled for the 1st Wednesday of every other month, 6:30-8:00pm (ET)
**This is a virtual Meeting. Members living in the Massachusetts and Northern RI, please watch your email for meeting information and instructions on how to RSVP
Macomb County Area
Support Group Leader: Barbara Skovran
Contact Information: barbs09 [at] gmail [dot] com (barbs09[at]gmail[dot]com)
Meeting Schedule: Meetings are scheduled for the 2nd Wednesday of every other month. 7-9pm (ET)
**This is a virtual Meeting. Members living in the Macomb County area, please watch your email for meeting information and instructions on how to RSVP
MN Support Group
Support Group Leaders: Marie MV and Lindsay N
Contact Information: mneveningsjogrens [at] gmail [dot] com (mneveningsjogrens[at]gmail[dot]com)
Meeting Schedule: Meetings are scheduled for the 1st Monday of every month. 6-7:15pm (CT)
**This is a virtual Meeting. Members living in Minnesota, please watch your email for meeting information and instructions on how to RSVP
Greater Kansas City Area
Support Group Leaders: Joi L
Contact Information: kcsjogrensgroup [at] gmail [dot] com (kcsjogrensgroup[at]gmail[dot]com) or 913-908-8909
Meeting Schedule: Meetings are scheduled the 1st Saturday of every 3rd month. 10:-11:30am (CT)
**This is a virtual Meeting. Members living in the Greater Kansas City area, please watch your email for meeting information and instructions on how to RSVP
Support Group Contact: Lauren
Contact Information: njsjogrensgroup [at] gmail [dot] com (njsjogrensgroup[at]gmail[dot]com)
Meeting Schedule: Virtual meetings are scheduled 5-6 times per year. Generally on Wednesday evenings.
**This is a virtual Meeting. Members living in New Jersey, please watch your email for meeting information and instructions on how to RSVP.
Support Group Contact: Andrea Dowdy
Contact Information: andrea [dot] dowdy [at] yahoo [dot] com (andrea[dot]dowdy[at]yahoo[dot]com)
Meeting Schedule: Meetings are scheduled for the 1st Saturday of every third month. 10am-12pm (MT)
**This is a virtual Meeting. Members living in New Mexico, please watch your email for meeting information and instructions on how to RSVP
We are currently seeking volunteer support group leaders in New York State for NYC and Long Island. Interested in learning more Please review our support group information sheet here and email mchampigny [at] sjogrens [dot] org (Michele Champigny) if you feel this volunteer opportunity is a good match for you!
New York City Area
Interim Support Group Leader: Paula Yelsey
Contact Information: (301) 538-3422
New York City Area "20s & 30s" with Sjögren's
Support Group Leader: Paula Yelsey
Contact Information: (301) 538-3422
Upstate New York
Support Group Leader: Jen Austin
Contact Information: (716) 980-5980 or upstatenysjogrensgroup [at] gmail [dot] com (upstatenysjogrensgroup[at]gmail[dot]com)
Meeting Schedule: Meetings are scheduled for the 2nd Sunday of every month. 7-8:30pm (ET)
**This is a virtual Meeting. Members living in Upstate NY, please watch your email for meeting information and instructions on how to RSVP
We are currently seeking volunteer support group leaders for North Carolina. Interested in learning more? Please review our support group information sheet here and email mchampigny [at] sjogrens [dot] org (Michele Champigny) if you feel this volunteer opportunity is a good match for you!
Central NC
Support Group Leader: Diane White
Contact Information: centralncsjogrensgroup [at] gmail [dot] com (centralncsjogrensgroup[at]gmail[dot]com)
Meeting Schedule: Meetings are acheduled the 3rd Thursday, every other month. 6:30-7:30pm (ET)
**This is a virtual Meeting. Members living in Central NC, please watch your email for meeting information and instructions on how to RSVP
We are currently seeking volunteer support group leader to lead groups in Northern OH (Cleveland) and Western OH (Cincinatti) . Interested in learning more Please review our support group information sheet here and email mchampigny [at] sjogrens [dot] org (Michele Champigny) if you feel this volunteer opportunity is a good match for you
Columbus/Central Ohio
Support Group Leader: Gayle Wanamaker
Contact Information: Wanamakergayle [at] gmail [dot] com (Wanamakergayle[at]gmail[dot]com)
Meeting Schedule: Meetings are scheduled on the 3rd Wednesday of every other month. 7-9pm (ET)
**This is a virtual Meeting. Members living in the greater Columbus/Central OH area, please watch your email for meeting information and instructions on how to RSVP
Edmond
Support Group Leader: Sharon J Abrams
Contact Information: (405) 330-2356
full day in person educational meeting scheduled every fall. Members living in Oklahoma, please watch your email for details.
We are currently seeking volunteer support group leader to lead a virtual group in Oregon. Interested in learning more Please review our support group information sheet here and email mchampigny [at] sjogrens [dot] org (Michele Champigny) if you feel this volunteer opportunity is a good match for you!
Portland
Support Group Leader: Support Group Leader Opening
Contact Information:
We are currently seeking volunteer support group leader to lead a virtual group in Central PA/Pittsburgh. Interested in learning more Please review our support group information sheet here and email mchampigny [at] sjogrens [dot] org (Michele Champigny) if you feel this volunteer opportunity is a good match for you!
Central Pennsylvania
Support Group Leader: Support Group Leader Opening
Contact Information:
Philadelphia
Support Group Leader: Barbara
Contact Information: (610) 653-4689 or MyPhillySjogrens [at] gmail [dot] com (MyPhillySjogrens[at]gmail[dot]com)
Meeting Schedule: Meetings are scheduled on the 3rd Saturday, every third month. 10am-12pm (ET)
**This is a virtual Meeting. Members living in the greater Columbus/Central OH area, please watch your email for meeting information and instructions on how to RSVP
Support Group Contact: Danita N Calvert
Contact Information: scvirtualsjogrensgroup [at] gmail [dot] com (scvirtualsjogrensgroup[at]gmail[dot]com)
Meeting Schedule: Meetings are scheduled for the 3rd Wednesday of every other month. 6-7:30pm (ET)
**This is a virtual meeting. Members living in South Carolina, please watch your email for meeting information and instructions on how to RSVP
We are currently seeking volunteer support group leaders to lead virtual meetings in Tennessee. Interested in learning more? Please review our support group information sheet here and email mchampigny [at] sjogrens [dot] org (Michele Champigny) if you feel this volunteer opportunity is a good match for you!
Austin/Central Texas
Support Group Leaders: Paula Aicklen and Charlene
Contact Information: (214) 228-3678 or paicklen [at] gmail [dot] com (paicklen[at]gmail[dot]com) // Charcanizales [at] gmail [dot] com (Charcanizales[at]gmail[dot]com)
Meeting Schedule: Meetings scheduled on the 2nd Saturday, every 3 months. 10:30am-12pm (ET)
**This is a virtual Meeting. Members living in the Austin area, please watch your email for meeting information and instructions on how to RSVP
Dallas
Support Group Leaders: Amy Junod and Jennifer Chavers
Contact Information: (214) 334-2450 (Amy) // (469) 688-5028 (Jennifer)
Meeting Schedule: Meetings scheduled on the 2nd Saturday, every other month, 10:30am-12pm (CT) with the exception of May, when the meeting is held on a Tuesday evening from 7-8:30pm (CT)
**This is a virtual Meeting. Members living in the Dallas area, please watch your email for meeting information and instructions on how to RSVP
Houston
Support Group Leader: Support Group Leader Opening
Contact Information:
San Antonio
Support Group Co-Leaders: Kim Dross and Kathy G
Contact Information: Kim: kd196310308 [at] aol [dot] com Kathy: katgusman783 [at] gmail [dot] com (katgusman783[at]gmail[dot]com)
Meeting Schedule: Meetings are scheduled on the 3rd Thursday of every other month, 7-8:30pm (CT)
**This is a virtual Meeting. Members living in the San Antonio area, please watch your email for meeting information and instructions on how to RSVP
Central VA/Charlottesville
Support Group Leader: Mary Beth A
Contact Information: centralvasjogrens [at] gmail [dot] com (centralvasjogrens[at]gmail[dot]com) or 703-501-7462
Meeting Schedule: Meetings held approximately 4 times per year. Schedule Varies.
**This is a virtual Meeting. Members living in Central VA, please watch your email for meeting information and instructions on how to RSVP
Hampton Roads/Norfolk
Support Group Leader: Bonnie Elverum
Contact Information: (757) 268-4928 or elverum4 [at] gmail [dot] com (elverum4[at]gmail[dot]com)
Meeting Schedule: Approximately 4-6 meetings per year. Schedule Varies.
**Mix of Virtual and Live Meetings. Members living in Hampton Roads/Norfolk area, please watch your email for meeting information and instructions on how to RSVP
Northern Virginia
Support Group Leader: Mary J
Contact Information: novasjogrensgroup [at] gmail [dot] com (novasjogrensgroup[at]gmail[dot]com)
Meeting Schedule: Approximately 4-6 meetings per year. Schedule Varies. **Mix of Virtual and Live Meetings. Members living in Northern VA, please watch your email for meeting information and instructions on how to RSVP
Salem
Patient Support: Carol Watson
Contact Information: (540) 389-7503 or cmhwatson [at] comcast [dot] net (cmhwatson[at]comcast[dot]net)
Meeting Schedule: Salem members welcome at the Central VA virtual group meetings. No meeting scheduled in Salem. **This is a virtual Meeting. Members living in Western VA, please watch your email for meeting information and instructions on how to RSVP to the Central VA group meetings.
Seattle Area
Support Group Leader: Susan Wallace
Contact Information: (206) 498-0330 or smw2452 [at] gmail [dot] com (smw2452[at]gmail[dot]com)
Meeting Schedule: Virtual Meetings take place approximately 6 times per year. Schedule Varies. **This is a virtual Meeting. Members living in the Seattle/Tacoma area, please watch your email for meeting information and instructions on how to RSVP
Madison Area
Support Group Leader: Diana B.
Contact Information: Madisonsjogrensgroup [at] gmail [dot] com (Madisonsjogrensgroup[at]gmail[dot]com)
Meeting Schedule: Meetings take place the 3rd Tuesday of every month, 12-1pm (CT) no meetings in August or December
**This is a virtual Meeting. Members living in the Madison area, please watch your email for meeting information and instructions on how to RSVP